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When A Friend Has Cancer

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At the Image Reborn cancer retreat I attended this weekend in Deer Valley, one of the ladies passed around a sheet and asked us to write down five things that impressed us about our friends and family and five things that didn’t help at all during this time. I flipped to the later section immediately. I couldn’t help it.

After my diagnosis last month, I did have a handful of touching, warm fuzzies:
Right after my diagnosis, my sister sent a beaded bracelet and Green Goddess medallion blessed by the Dalai Lama (?), a t-shirt to wear during recovery and a mantra to chill out with. Some people really surprise you.

But what you remember more are the negative instances. Like Dr. Phil’s quote “It takes a thousand ‘atta boys’ to make up for one ‘you’re no good’; it takes 10 well-placed gestures to make up for one lame one.

When Friends Don’t Show

You’re in the midst of the worst reality you could imagine (unless you or one of your family members has been kidnapped and tortured) and when you call the troops to rally, you expect them to, well, rally. You remember those who don’t. Sad but true.

When I asked my best friend of 10 years for a ride to the hospital for surgery, she picked me up then pulled over minutes after getting on the freeway to ask if I could drive because she was too tired. So technically, I drove myself to the hospital.. in her car. When we got to Huntsman Cancer Hospital she sat with me for 10 minutes then looked at her watch, said she had to go and left.

For the two hours between when my friend left and the parents arrived, I was alone and very anxious in a sterile, uninviting examining room. The nurse entered and asked, “Where are your people?” I don’t think I ever felt so alone. Tears welled up.

The next day, flowers (the only flowers I got from someone other than Ryan) arrived from a old friend in Washington that I hadn’t seen in years. Though we speak every week, by email or phone, I didn’t expect flowers. When Ryan walked into my bedroom carrying the bright blooms, I felt her hand reach out and gently touch my shoulder. “You’ll get through this,” they said. I cried. And it made me even more pissed that my other ‘best’ friend who lives 20 minutes away couldn’t surprise me like that let alone sit with me in the hospital.

I know that everyone has their ‘side’ and their own life drama to tend to but when a friend is dealing with something like cancer…on the day of their surgery, you drink a cup of coffee and put your shit on hold for two hours. On the flipside, my parents cancelled their trip to Canada, got in a car and drove 12 hours to be by my side as they wheeled me off- and then as they wheeled me back. That still brings up tears.

BTW, you think you’re extending the olive branch by saying, “Let me know if there’s anything I can do”? You have to actually do something. Otherwise, it’s cliche like saying “bless you” or “how are you?” We know it’s just something you say, like “Sorry for your loss.” 

Drama is Saved For The Sick

Cancer patients aren’t thinking of ways you can help. We’re thinking about not dying, not working, not feeling okay ever again. The heart of the person who asked is well-placed but most patients aren’t going to make much of a generic offer like that. Plus, if we do call later to ask for something, we usually get, “It’s not the right time, we’re really busy, I have to work, the car’s in the shop, I need to sleep or Seinfeld is on, call me next time.”

I can’t tell you how many people I called to see if they could go with me to my first doctor’s consultation before Ryan took the time off work to be there. No one eagerly assumed a position by my side. The “best” friend did go to a consult with one of the surgeons (I saw a total of four doctors in addition to an online panel of medical professionals) but only because it was supposed to be a short one. I was going to go alone but the doctors told me I definitely needed to bring someone because I would be too overwhelmed to think of every question that needed asking or to remember what was said by the doctors. She cried through the whole interview and I felt like I had to take care of her instead of the other way around.

I’m not a victim and I rarely ask for help (primarily because I’m afraid of exactly this kind of thing). I take care of myself. Even Ryan wonders what he can ever do for me. But now I feel like I have an excuse to expect some handholding, cuddling, comfort, flowers, and extra effort. Don’t I?

cancer

How It Went Down

The night after my lumpectomy the “best” friend came over with her boyfriend, swept in, exclaimed that they were starving, picked through my refrigerator, made themselves sandwiches, dropped the dirty dishes in the sink and left. I actually thought she was coming to see how I was doing! Didn’t realize I was a convenience store. They gave me a brief hug goodbye and left. No more than 20 minutes. Am I that much of a rock that my friends think this all would be cool with me??

To be fair, it was already a bit chaotic at my house. Another friend of mine had shown up with her daughter for a playdate with Sage. She thought that might help keep Sage entertained while I laid low. it was actually my bad. My friend asked to come visit post knife, and I said, sure, and bring your daughter. We’ll drink some wine, watch a movie, the kids will play…. My parents thought I was nuts but I thought I was strong enough to handle it. it was outpatient surgery afterall.  

Her 5yo refused to play with Sage and kept coming into the living room; Sage cried, the daughter fussed, all night long. Not good for a post-op day. Ryan brought food home for everyone and they slept over – less than 24 hours after surgery. Ryan told me later that he wanted to ask her to leave but he was afraid to offend us. I wouldn’t have minded really. But I would have felt horrible too. The whole thing was my idea in the first place. I just didn’t know. I wish she had picked up that we need a break. I spent the entire next day in bed recovering.

I’m sure my friends have no idea I’m disappointed and saddened. They would see their ‘efforts’ as a grand gesture and my criticism as petty. Maybe. I just have a hard time thinking that it’s not all Lifetime Movie warmth for other women when they learn they have cancer. I’m jealous of the support they have.

If friends truly do want to help, here’s my advice: Make specific offers- like scheduling a day to go to a radiation treatment, or take your friend’s child for the hour they’re getting it done or feeling low, or bring them food instead of eating theirs. Force her to go on a hike or climb a couple of routes so they don’t get fat and lazy, take her for a pedicure, read trashy People articles to her. Don’t make her feel like she’s ruining your day- even if it’s your wedding day. Bring a new pillow to prop her up on her weaker days. And, most importantly, if you do make a commitment, don’t blow it off.

How To Step Up When it’s Cancer

Here’s a great example of stepping up: At my Image Reborn retreat some of the ladies said they were in so much pain that the only thing that helped was medicinal marijuana. Yet because they couldn’t bring it on the plane, they didn’t have any. I called an acquaintance. How much? “It’s on us. I’m glad to be able to help,” she said. The collective gratitude from the group was intense. You could tell it was appreciated just by the catcalls as several Rubenesque women ran naked under the full moon at the Deer Valley retreat house.

Share simple pleasures like a chickflick, a cup of coffee, gossip. Don’t talk about medical issues unless she wants to and never, ever talk about other people’s cancer horror stories (we’ve gone over that one).

Your friend is still the same person she was before cancer, she just needs you to be present a little more, both in spirit and body. She needs you to be what friends are supposed to be.

Don’t walk in front of me, I may not follow.
Don’t walk behind me, I may not lead.
Just walk beside me and be my friend.- Albert Camus

Kristen Gets Hitched

My friend and favorite bachelorette finally threw down and got married. After 3 (?) engagements, she strutted her stuff to her man and said, “I do.” Oh, the wedding was an odd one. Determined not to do it by the book (she never has in the past; why start now?), it began with Kristen sitting in the bathroom as the makeup ‘artist’ painted red flowers on the side of her eye. Her voice trembled, “I can’t believe this is all for me!” You’re kidding, right? The funny thing was Kristen in that moment actually believed that she was never treated like a princess before. If it were anyone else, I might have been laughing. Kristen’s WHOLE life is all about her and she has had soooo many experiences of people taking their bows at her feet. It would have been the phoniest comment but Kristen is the ultimate actress- she believes her sh*t. She can be anyone else she wants whenever she wants and today she was the proverbial bride – in black, red and patent leather.

The setting was gorgeous. Someone’s private home in Park City overlooking the surrounding resorts. The Brazilian drums beat and the groom, then bride, shimmied through the crowd dressed in freakish Halloween-meets-red light-district attire. Their friend Melissa read “The Naked Poem” like we were at a poetry slam, the Rabbi went on and on about something that really made no sense – even referenced Jesus!- then called the high priestess, angel, high queen…ME to start the series of blessings. I skipped up to the front, joked and got anecdotal, read a short ‘blessing’ which was more of toast for the happy couple of the hour and finished by wishing them lots and lots of sex. Made the crowd laugh. 😉 Six others came forward with blessings of varying lengths. After, DJ Steve played from what they called the Jellyfish, poledancers did the garter dance, and, later, people gathered round for the firedancers and hula hoopers. The cops showed up around 1 a.m. and sent the burners (Burning Man fans) off to Summerween and the rest of us home.
My only complaint was the food. It was like I was at a Mormon wedding (even though they’re not Mormon). Nuts, cheese, crackers, fruit and wilting shrimp
cocktail; tiny (homemade) cupcakes for dessert. I brought a bag of Tater Tots and passed them around pre-ceremony and became everyone’s best friend. I actually met one man who had never had a Tot! He ate three. I devirginized him. 🙂 To be honest, we were warned there would be no food but that’s my favorite part of a wedding. I’d much rather eat than drink. I guess you can’t blame Kristen. With somewhere between 100-200 people attending, it saves a whole lot of money serving nuts instead of chicken.
The whiskey ran out within an hour, but there was plenty of beer, wine and vodka with fruit juice or Red Bull. On my empty stomach, I got hammered and wound up being one of the last to leave. All in all it was a fun party but surreal as a wedding.

What Not To Say To Someone With Cancer

Will everyone PLEASE chill on the cancer horror stories?? I’m a bit tired now tonight. Didn’t sleep very well last night (4 hrs), spent all day at the Outdoor Retailer show, strolling along the aisles forgetting my life has changed forever and now I’ve had the shittiest evening of all time. I took Sage up to Kamas for a kiddie pool party my friend was throwing. Over cake, she thought she was helping by introducing me to a woman who had grade 1 breast cancer like me. Except that after treatment and a clean diagnosis/prognosis from her dr, she got the same in the other breast and now has jaw cancer. Which means she’s probably going to die sooner rather than later according to the radiology oncologist I spoke with last Thursday. Then, my friend described another friend of hers who died of brain cancer at 29 and another who has it presently, and finished by telling me her aunt died of lung cancer despite never smoking. As my friend Kristen put it, “What the hell was that woman thinking?!” I got home, curled up in a ball in the corner of my closet and sobbed. This is not helpful nor what I need to hear right now! I was doing fairly well for the last few days. Today, not so much. What I need right now is a good therapist, 100 other stories of how women like me live the same life span as those who never had cancer and a 2-hr pedicure/massage. Not conversations with women who can’t get ahead of the eight ball or who die. I’m scared enough as it is, dammit. So please, make something up or at least save those dire tales for those outside of earshot. Thank you. 🙂

Ta Dah!

All’s well so far. Took the bandages off this morning. My mom acted very pleased and impressed with the job my surgeon did. I’m sure considering the circumstances there was no way I was going to look much better. But I looked down and saw this divot on the side of my breast that made me want to cry. I actually did when I stepped into the shower and no one could see or hear me. That’s how reality hits you. Alone, in the shower, as you look at the aftermath of this disease. In an attempt to cheer me up my dad commented that my boobs never looked that great in the first place. Gee, thanks dad. He was kidding of course but tough love ain’t always well placed. Boo hoo. It did look a little better when I toweled off and, in a bra and shirt, you can see nothing different. From head on you can’t even tell I had a piece of me scraped out. Only when you look down, over my shoulder. The skin fold is a bit more prominent. You can also see the crescent incision around part of my areola. I’m told that will heal to near invisibility. When I undressed tonight I noticed that the swelling had gone down a little and the dent was less noticeable. I’m adjusting. Plus, it’s way better than nothing – literally – considering a mastectomy was on the table last week. Just got back from a dinner at Deer Valley for MountainHardwear media to kick off the OR show. At the top of the Wasatch lift in Cushing’s Cabin, we dined on caprese and tofu salads and tons of roughage. Since I vowed to overhaul my diet, this is a great start. I haven’t had a single French fry in 48 hours! I made it through three hours of socializing and the boob’s not bothering me yet. My parents are slightly pissed. They think I’m not taking care of myself. But laying in bed 24/7 just isn’t me. Part of my recovery is getting back to business; doing dinner tonight and meeting with my peers was medicine too. I did, however, back out of the 10 mile hike they had scheduled at 6am tomorrow morning. That might have been overkill. I opted for a shorter walk then meeting up with everyone for lunch at noon. I feel a tad guilty for not being more of an invalid. My parents drove all the way out here from San Diego to help me for the week but there’s not much to do anymore. I’m up and about trying to work and arranging meetings. I’m (almost) as good as new. I’m missing part of my boob and I can’t lift anything with my left arm but other than that I can deal. Emotionally, I’ll have bouts but you can’t schedule those. My mom has been fantastic in the morale department while I was healing but now I’m getting lectured about taking care of myself. I feel like I’m back in high school where I have to hide what I’m doing or what I plan to do so I “don’t get in trouble”. I really don’t want to lie in bed all week. I want to get back to my life. What life will that be now? I can almost black out what the last two weeks brought. But then I look down or move too quickly and I’m reminded of their gravity. My life has definitely changed. I’m different. I’m not like everyone else, and not in a special way. In a way that causes awkward silence or thoughtful stares or false sympathy. I can’t even say I’m a cancer survivor because it’s not necessarily gone yet. Soon, two or three weeks, I’ll be radiating the crap out of it and then, maybe, I’ll be a survivor. I popped two lortab tonight to sleep well. Drifting off as I type…..

Surgery set for today…..

“This was kind of fun,” said the medical radiologist as he shook my hand goodbye. “I know it sounds bad to say and I don’t think I’ve ever said this, but it’s been kind of fun.” I entertained him. The man who basically told me that if my cancer comes back, I will die, left happy. Well, that makes one of us. I had just spent three hours hearing what the doctors involved in my case thought and recommended; answering my unending questions about cancer, the prognosis, the protocol, the aftereffects and so on. I guess not every victim er patient is as charming and spirited as I am.
The concensus? Lumpectomy and radiation; bilateral mastectomy (with implants) later if I’m positive for the breast cancer gene. Surgery is tomorrow. I’m impressed by how thorough this process is. From the start it’s like they’ve done this before or something. 😉 One in 7 women will develop breast cancer and, depending on the severity (stage) and the treatment you go through, there’s about a 15% chance of it coming back. If it comes back in some part other than the breast, you die in three years. At least that’s what the oncologist sentenced. Gulp.
The other physicians and nurses say he was just trying to make a point. His job is to get everything the first time around and not mess around with trying to spare your feelings, your skin or your initial physical suffering. For those who couldn’t face losing a breast or doing radiation for cosmetic reasons, take note. The end result of all this is that I take the knife to boob tomorrow afternoon. 1:30pm to be exact. They will cut out the tumor (2cm, Grade 1), send it to the lab for biopsy, test my lymphnodes for spreading and possibly remove any infected ones, then sew me up. I go home that evening and back to normal in a day or two….except that it’s not like a normal surgery.
It’s not the end of a problem but the beginning. In two weeks, I will have 30 days of radiation to make double sure there’re no cancer cells left in the breast AND maybe 4-6 MONTHS of chemo if those little bastards have spread to the nodes. Chemo’s the thing that kills everything- your hair, your nails, your chance for more kids. It also causes nausea and vomiting. Yep, it’s bad. But it also kills the poison that could kill you, the docs say to make you feel better. So how did this happen? I asked a cancer nurse if there was something I did that caused the cancer. She said, “You’re a woman.” Wasn’t bleeding once a month for all of your adult life punishment enough??
I wouldn’t wish this on anybody but at the same time, I would never volunteer to be that one in seven. It really does suck and you have no idea how to deal with all of this information. It’s not supposed to happen to me, I think to myself.
The post followup mammogram revealed a Grade 1 well-differentiated invasive ductile cancer. A lump in the upper left outer quadrant of my chest. At that point I could feel the lump- because I knew where to look; it’s about the size of a hot tamale jelly bean. I am a bit calmer compared to last week. I suppose thinking about it all weekend, Googling and talking to docs prepped me for today. I’m sure I’ll be a waste case once the path report comes back. All I can handle is the lump removal. Everything else is surreal. Mastectomy might be my only option if the genetic test for that breast cancer gene is positive. It also means I’m a candidate for ovarian cancer. This is all happening soooo fast. One day, I’m doing my annual exam, the next I’m possibly losing two breasts and two ovaries. I can’t stop thinking about everything I have going on this month- OR and Ryan’s parents coming to town on the 30th. We’re supposed to go to Jackson. Now’s not convenient for cancer.
Ryan’s family knows and they’re incredibly supportive. It kills me that I’m putting everyone through this storm. The burden is hard enough for me to bear. No one else should have to deal with it.

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