Category Archives: Jill Adler’s Personal Blog

Cancer Update

“This was kind of fun,” said the medical radiologist as he shook my hand goodbye. “I know it sounds bad to say and I don’t think I’ve ever said this, but it’s been kind of fun.” I entertained him. The man who basically told me that if my cancer comes back, I will die, left happy. Well, that makes one of us. I had just spent three hours hearing what the doctors involved in my case thought and recommended; answering my unending questions about cancer, the prognosis, the protocol, the aftereffects and so on. I guess not every victim er patient is as charming and spirited as I am.
The concensus? Lumpectomy and radiation; bilateral mastectomy (with implants) later if I’m positive for the breast cancer gene. Surgery is tomorrow.
I’m impressed by how thorough this process is. From the start it’s like they’ve done this before or something. 😉
One in 7 women will develop breast cancer and, depending on the severity (stage) and the treatment you go through, there’s about a 15% chance of it coming back. If it comes back in some part other than the breast, you die in three years. At least that’s what the oncologist sentenced. Gulp. The other physicians and nurses say he was just trying to make a point. His job is to get everything the first time around and not mess around with trying to spare your feelings, your skin or your initial physical suffering. For those who couldn’t face losing a breast or doing radiation for cosmetic reasons, take note.
The end result of all this is that I take the knife to boob tomorrow afternoon. 1:30pm to be exact. They will cut out the tumor (2cm, Grade 1), send it to the lab for biopsy, test my lymphnodes for spreading and possibly remove any infected ones, then sew me up. I go home that evening and back to normal in a day or two….except that it’s not like a normal surgery. It’s not the end of a problem but the beginning. In two weeks, I will have 30 days of radiation to make double sure there’re no cancer cells left in the breast AND maybe 4-6 MONTHS of chemo if those little bastards have spread to the nodes. Chemo’s the thing that kills everything- your hair, your nails, your chance for more kids. It also causes nausea and vomiting. Yep, it’s bad. But it also kills the poison that could kill you, the docs say to make you feel better.

So how did this happen? I asked a cancer nurse if there was something I did that caused the cancer. She said, “You’re a woman.” Wasn’t bleeding once a month for all of your adult life punishment enough??
I wouldn’t wish this on anybody but at the same time, I would never volunteer to be that one in seven. It really does suck and you have no idea how to deal with all of this information. It’s not supposed to happen to me, I think to myself.
The post followup mammogram revealed a Grade 1 well-differentiated invasive ductile cancer. A lump in the upper left outer quadrant of my chest. At that point I could feel the lump- because I knew where to look; it’s about the size of a hot tamale jelly bean.
I am a bit calmer compared to last week. I suppose thinking about it all weekend, Googling and talking to docs prepped me for today. I’m sure I’ll be a waste case once the path report comes back. All I can handle is the lump removal. Everything else is surreal. Mastectomy might be my only option if the genetic test for that breast cancer gene is positive. It also means I’m a candidate for ovarian cancer.
This is all happening soooo fast. One day, I’m doing my annual exam, the next I’m possibly losing two breasts and two ovaries.
I can’t stop thinking about everything I have going on this month- OR and Ryan’s parents coming to town on the 30th. We’re supposed to go to Jackson. Now’s not convenient for cancer.
Ryan’s family knows and they’re incredibly supportive. It kills me that I’m putting everyone through this storm. The burden is hard enough for me to bear. No one else should have to deal with it.

Finally Breaking the News…

I woke up this morning thinking- wishing – yesterday was just one big nightmare and not real. That I could go about my day as if the bomb had never been dropped.
I have breast cancer.
Well, at least that’s what the radiologist seems to gravely think after surveying my follow-up mammogram and ultrasound. ‘It doesn’t look good, I’m afraid’ he said. Oh yeah- he kept saying he was sorry- like he had bumped my cafeteria tray or something. Your instinct is to say ‘that’s ok’ but I held my tongue…because it’s NOT OKAY! And now it’s the god damn fourth of July weekend and doctors have all decided that medical issues can wait.
I have an appt wed. with a general surgeon that may or may not take my insurance so I’m not sure if I have a ‘next step’ yet, even though I need one. I guess I could just pay for the office visit and find another doctor to do the surgery after Dr. Neumayer makes a diagnosis but then it would be like getting a second opinion and all of this is about time. Get this thing out. We don’t yet know what stage it is, whether it’s spread to lymph nodes and would require radiation or chemo or both. The consensus for sure is that a lumpectomy is in order.
I figure since I was planning on a boob job eventually, that they might as well lop the whole thing off and something good can come from tragedy. Yes, tragedy. That’s how I feel. I always thought that if someone told me I had cancer I would fight like hell (which I will) and have that fiercely positive attitude to carry me through it. How the hell are people positive? I’ve been crying at the drop of a hat since before the doc actually broke the news. I didn’t cry myself to sleep because I was drunk and passed out, but this morning the tears turned back on. This isn’t me- this teary chick. And that hurts even more- to feel so doomed.The thing that scares me the most in this whole world – death- is sitting on my shoulder. I go get this biopsy, they tell me it’s spread, that I need chemo, the hair falls out, I’m sick and tired all the time, my organs stop functioning and I die. That’s not how I saw the rest of my life the day I met the radiologist.
I’m supposed to be holding Sage on my shoulders at the fair, dancing with her at her birthday parties, taking her skiing in Europe, hugging her at her graduation and telling her how gorgeous she looks on her wedding day. I’m supposed to be arcing at Alta when I’m 80! Not gone. Not someone’s memory. I don’t want people to be sorry for me. I wanted them to be envious. Could this all just be a scare? They take a lump out like people have cysts removed all the time? But the radiologist with his somber countenance and heavy tone crushed that hope. Ryan cried too yesterday. He heard it as well. Stef talked with us after and he said that made him feel a little better. Like we had a plan and it wasn’t all death and roses. He’s really in this with me. I hate myself for bringing him all of this ‘life’. If he dated someone his own age, he wouldn’t need to experience all of this. Poor guy.I keep going through my head – was it the junk food I eat, the coffee (but over the year it doesn’t begin to total what the average – healthy- person drinks), karma? But I never killed anyone.
I’ve always been a lucky person. Does that mean I will also be lucky here or that my luck’s run out?

Finally the guts to share this with everyone….

I woke up this morning thinking- wishing – yesterday was just one big nightmare and not real. That I could go about my day as if the bomb had never been dropped.
I have breast cancer.
Well, at least that’s what the radiologist seems to gravely think after surveying my follow-up mammogram and ultrasound. ‘It doesn’t look good, I’m afraid’ he said. Oh yeah- he kept saying he was sorry- like he had bumped my cafeteria tray or something. Your instinct is to say ‘that’s ok’ but I held my tongue … because it’s NOT OKAY! And now it’s the god damn fourth of July weekend and doctors have all decided that medical issues can wait.
I have an appt wed. with a general surgeon that may or may not take my insurance so I’m not sure if I have a ‘next step’ yet, even though I need one. I guess I could just pay for the office visit and find another doctor to do the surgery after Dr. Neumayer makes a diagnosis but then it would be like getting a second opinion and all of this is about time. Get this thing out. We don’t yet know what stage it is, whether it’s spread to lymph nodes and would require radiation or chemo or both. The consensus for sure is that a lumpectomy is in order.
I figure since I was planning on a boob job eventually, that they might as well lop the whole thing off and something good can come from tragedy. Yes, tragedy. That’s how I feel. I always thought that if someone told me I had cancer I would fight like hell (which I will) and have that fiercely positive attitude to carry me through it. How the hell are people positive? I’ve been crying at the drop of a hat since before the doc actually broke the news. I didn’t cry myself to sleep because I was drunk and passed out, but this morning the tears turned back on. This isn’t me- this teary chick. And that hurts even more- to feel so doomed.
The thing that scares me the most in this whole world – death- is sitting on my shoulder. I go get this biopsy, they tell me it’s spread, that I need chemo, the hair falls out, I’m sick and tired all the time, my organs stop functioning and I die. That’s not how I saw the rest of my life the day I met the radiologist.
I’m supposed to be holding Sage on my shoulders at the fair, dancing with her at her birthday parties, taking her skiing in Europe, hugging her at her graduation and telling her how gorgeous she looks on her wedding day. I’m supposed to be arcing at Alta when I’m 80! Not gone. Not someone’s memory. I don’t want people to be sorry for me. I wanted them to be envious.
Could this all just be a scare? They take a lump out like people have cysts removed all the time? But the radiologist with his somber countenance and heavy tone crushed that hope. Ryan cried too yesterday. He heard it as well. Stef talked with us after and he said that made him feel a little better. Like we had a plan and it wasn’t all death and roses. He’s really in this with me. I hate myself for bringing him all of this ‘life’. If he dated someone his own age, he wouldn’t need to experience all of this. Poor guy.
I keep going through my head – was it the junk food I eat, the coffee (but over the year it doesn’t begin to total what the average – healthy- person drinks), karma? But I never killed anyone.
I’ve always been a lucky person. Does that mean I will also be lucky here or that my luck’s run out?

Thoughts on Writing

I just can’t do it. I wake up and still feel tired. I can’t motivate to write. I can’t do much more than surf the web. I hit the sack and seem to fall fast asleep but in the morning it’s like I never slept. Is this depression? But I don’t feel depressed. I do feel like I’m coming down with something. Two weeks of rain doesn’t help either. Luckily I find bits of joy that spike sunrays straight to my heart. Sage’s squeals and laughter, and this little comic strip I came across when we went over to Park CIty Bread and Bagels for bagels last week. To all of my writer and editor friends, I know you’ll get a kick out of this one:

We’re Not So Much Alike All The Time

There’s something uplifting about a doctor telling you your skin’s still youthful as he’s checking you out for skin cancer. You gotta think that of all the people that would deal you the brutal truth it would someone at the Huntsman Cancer Institute. But instead of shaking his head at my teen years of stupidity, and telling me I’ve aged like Robert Redford, he actually sounded impressed. The way he said it gave me the warm fuzzies. I thought about asking him to guess my age had he not seen my chart (and compared to other women he has seen) but I didn’t want to push my luck. Besides, I wasn’t here for vanity. I was here for sanity. Despite the scariness, I take advantage of Huntsman’s once a year free skin cancer checks. My family has a history of melanoma. So far so good for me, but I can’t ignore the damage I did before I was even 20. Basking at Malibu with nothing for protection but a string bikini; the only concern in the sun was when the bottle of baby oil got low. One time, I fell asleep and sunburt my eyelids shut! My whole front was so bad, my dad dunked me in a cold bath of white vinegar to neutralize the burn. I stank for a month and to this day, the smell of vinegar turns my stomach. You got it, can’t stand Caesar salad. I don’t remember my mom ever discussing SPF or sunscreen with me. In fact, I seem to recall she was the one who bought my baby oil. If only I knew then….. On me, tanning is a waste of time anyway. I could nurture a golden brown all summer but the minute I stepped out of the sun, it would begin to fade. By Back to School, it was gone. Kids these days are lucky. They have ‘Fake Bake’ and Mist on Tans. I tried both during the Sundance Film Fest at Conair’s gifting lounge. I swear I got home and Ryan accused me of cheating on him. I had a sweet dark tan and a beautiful new hairdo from a celebrity stylist that was working the Conair room. The tan lasted about two weeks (the hair, eight. Thanks, Marcus!). Given my financial status I don’t see me going to a salon on a regular basis to look brown instead of white but the tube of Sunless and Skinny (by Fake Bake) does the trick in a pinch. No way am I letting Sage outdoors without sunscreen. It’s so cute right now because she actually asks for it before we get out of the car. She even likes to put it on herself. Ryan is the problem. At 29, he continues to worship the sun. I can speak out my a*^ and he will still skip the sunscreen, use ‘tan’ and ‘healthy’ in the same sentence and get on my case for being “white”. No amount of statistics, reports or real life stories will smarten him up. Yes, my boyfriend is an idiot on certain levels. I can only hope he keeps his opinions to himself around Sage. While we’re on it, he has the same basic attitude about marijuana. Ok, you can close your jaw. He even joked that his teenage cousin who’s selling pot to his friends at school ought to move to California and get a license to deal medical marijuana so can’t get arrested. Um, I could be wrong but I’m pretty sure there’s not a state in this country that allows a 15-year-old to sell pot- legal or otherwise. Talk about setting an example. However, I can’t tell you how many of my friends are married to guys that still smoke pot- 30s, 40s, 50s. And they ain’t got cancer. Not yet anyway. Ryan stopped smoking around the time we started dating because it’s not my thing. But his attitude about it not being bad or addicting or toxic hasn’t changed. Yes, it’s a hot button topic. I don’t necessarily diss people who smoke; many of my friends puff in the trees at various Utah resorts but I won’t date them. Anyone who needs a substance (illegal or otherwise) on a regular basis to ‘take the edge off’ is an emotional retard. Relationships are hard. Ryan’s argument is that it’s not as bad as cigarettes or alcohol. I don’t date drunks or smokers either. Again, I worry that his opinions will sway Sage they way they have his cousin. If anyone can offer a way to debate this argument AND WIN, I’m all ears.
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